Skip to main content

16 Ways to Imagine What Fibromyalgia Disorder Feels Like







1. “Imagine the worst sickness, fatigue and pain and your head is in a deep fog where it made you think to go to the hospital. Now imagine feeling like that every day and knowing if you go to the hospital they will likely find nothing wrong and send you home and tell you to see your family doctor. That is Fibromyalgia Disorder.
2. “Imagine waking up in the morning feeling exhausted, as if you hadn’t slept in days. As you lie in bed, trying to rustle up the energy to get up and make your way to the bathroom, you wrestle with the thought: ‘Can I make it through another day?’ Then imagine that everything you do, even the smallest tasks, feels like you are walking through waist-high wet concrete.
3. “Picture a phone. There’s something wrong with the charger. No matter how much you try to charge it it never charges past 50 percent, if you’re lucky. You close all the apps so you can to try to preserve battery, but it’s no use. It quickly drops back down to zero percent in no time. Now imagine you’ve been hit by a bus, and you are the phone.
. “I tell people, ‘Do you know how you feel when you have the flu? Body aches all over, everything hurts even your hair and nails? Yea, those are my good days.
5.“Think of the worst flu you’ve ever experienced, and pair that with falling down three flights of stairs, straight into a beehive. That’s Fibromyalgia Disorder.
6. “For me Fibromyalgia Disorder is fuzzy and foggy thinking and on a bad day moving feels like I am trying to walk through thick Jell-O. Doing normal things causes pain. Total exhaustion without the benefit of restful sleep.
7. “It’s like your body was in a car accident while you had the flu and you never quite got over either one of them.
8. “The worst thing about this illness is you can’t [imagine it]. There are way too many symptoms that I think people get lost after you list the first 10. That’s often why people with fibro feel so isolated and turn to the online community to find people who understand it.
9. “Sometimes when I take off my clothes and look in the mirror I expect to see bruises everywhere because my body hurts and aches so badly. Then there are times where I wish I bruised all over because then people might take my pain seriously.
10. “Imagine being wrapped in a burrito by a blanket made out of those massage chairs with the balls in them. Except you never know how many are going to be pressing down on you or where. Some days its like the deepest muscles in my body are getting repeatedly punched, while others it feels like my skin is raw. All the while I can’t think straight, like my oxygen is running out from being crushed under the weight and pain.
11. “My body either feels it’s been hit by a truck or other days somebody has a voodoo doll sticking pins in and twisting them with Fibromyalgia Disorder.
12. “Pain so extreme that you feel like vomiting. It’s hard to think, eat, sleep or do ‘normal’ things. Your sensors are off. It feels like noise sounds in a cave, everything echoes. Smells bother you. Lights hurt your eyes and you feel dizzy like a carnival ride.
13.“It’s the ‘Princess and the Pea’ syndrome… every possible sensation is heightened. Being on a bridge or near an escalator feels like an earthquake. You smell things that no one else does. And you can’t tune out things like buzzing lights.
14. “Like getting Charlie horses in muscles you didn’t even know existed. When you go out to eat, you constantly squirm because the seat hurts your back. You’re always tired, and even a full pot of dark roast coffee won’t fix that.”
15. “It’s like the day after a strenuous workout, with the stiff, sore muscles. Add a sunburn and a headache, then the flu on top of that. Fibromyalgia Disorder fatigue feels like your blood has turned to cement in your veins.”
16. “I sometimes have severe Fibromyalgia Disorder episodes that feel how it feels when you touch a battery to your tongue when someone dared you in your younger years. It’s feeling that for a constant hour or so before pain meds kick in.

Comments

Popular posts from this blog

Fibromyalgia To Be Recognised as Long-Term Condition

Fibromyalgia is to be recognised by health professionals in Northern Ireland as a long-term condition. People who suffer from it complain of aches all over the body, as well as profound fatigue. Other symptoms include headaches, sleep deprivation and difficulty concentrating. Despite the severity of symptoms, people living with the condition in NI have said their voices have gone unheard and their symptoms ignored. Chronic aches After being inundated with complaints, the Patient and Client Council in Northern Ireland three years ago pressed the case for fibromyalgia to be recognised as a long-term condition. Having interviewed sufferers and lobbied politicians and health professionals, dedicated services are to be established across the health trusts. Image caption Martina Marks said she has had to live with pain for the last 10 years Martina Marks, who lives in County Down, said it was a relief to be taken seriously. "I have lived with the pain since 19...

FDA Approves Clinical Trial to Test Treating Fibromyalgia With TB Vaccine

With the recent approval of the U.S. Food and Drug Administration (FDA), a human clinical trial is set to begin on BCG, a vaccine typically used to prevent tuberculosis, to treat  fibromyalgia . BCG, or Bacillus Calmette-Guerin, has been used since 1921 as a TB vaccine in countries with a high prevalence of TB. One particular type, or “species,” of BCG is also used to treat  bladder cancer . Some studies have shown promise in BCG’s ability to potentially  treat type 1  diabetes and  multiple sclerosis  by  enhancing the immune system’s  ability to fight its own diseased cells — a process known as immunotherapy. The trial is funded by EpicGenetics, a biomedical company that also manufactures a blood test for fibromyalgia called the FM/a Test.  Research by  physician and EpicGenetics CEO Bruce Gillis suggests that fibromyalgia is an immune system disorder that causes patients to have abnormal white blood cells that p...

20 Products People With Fibromyalgia Swear By

Editor’s note:  The following piece should not be taken as medical advice.  Any medical information included is based on a personal experience. For questions or concerns regarding health, please consult a doctor or medical professional. When you struggle daily with the pain, fatigue and brain fog of  fibromyalgia , it can quickly become frustrating and exhausting – especially since there’s no cure or one-size-fits-all treatment. Finding a product or technique to help ease your symptoms is often an ongoing process of trial and error that usually involves a combination of treatments rather than one single “fix.” Although there is likely no single item that will totally alleviate your fibro symptoms, many of those in the  chronic illness  community have found some products (or a combination of products) that help them push through even their toughest flare days. To help you find some relief from your symptoms, we  aske...